Thursday, January 12, 2012

a bit of a rough week

The girls have had a bit of a rough week, Hollister especailly. Tuesday began with eye doctor appointments for all 3. Both Keller and Quinn put up a pretty big fight and were upset being poked and prodded by the doctors (who are all very nice unbeknownst to the girls). Hollister was calm much of the appointment. She has been seen once a week as the doctors were more concerned about her right eye. Thankfully the areas they were looking at have cleared up and she will only get seen once more in 2 weeks. Keller and Quinn are both clear until next year.

The girls also have been stuggling to eat from bottles and began on Tuesday working with a Speech and Language Pathologist (SLP) to try and improve things. Hollister continues to struggle the most, choking and holding her breath when presented with the bottle. Keller and Quinn just like to sleep thru feeds but seem to be getting the hang of it

Little Hollister also got her O2 changed around on Tuesday. Keller and Hollister have not been putting on weight like their sister and the doctors felt it was due to the flow and level of oxygen. Keller's oxygen was changed to 100% (versus 21%) and they took her flow down to almost nothing (.5 liter). She responded really well to this switch and has been putting on weight much better and has had very few desats and no Apena events. As soon as we got the all clear from the eye doctors the nurses changed Hollister over to the same senario as her sister. She didn't tollerate this as well as Keller and needed to have her flow set at 1 liter.

Wednesday was kicked off with the first of 3 immunizations. The girls got 3 big shots spaced out by 12 hours wrapping up with their last shot today.

When I called the NICU this morning we were told that Hollister continues to seem stressed. She had some apenas thru the night and was holding her breath again this morning when the SLP tried working with her and just a pacifier (which she's always liked). The doctors want to give her a day to rest a recover but if things don't improve they will recommend doing a brain scan to see if there is something that they missed previously. This of course worries us, my gut says she is just stressed out and has had a long couple of days but still. Once again, we know the NICU is 2 steps forward and 1 step back but the set backs are always scary. Please pray and send out positive vibes for little Holly-mouse.

Lastly, I have managed to develop mastitis in my left breast. Mastitis is an infection that occurs from plugged milk ducts. It makes you feel like you have the flu. I have a mild case and have just felt achy and really tired since Sunday. The lumps are really painful and have lingered longer than they should...most go away after 24 hours of massage, heat, and pumping. I just can't get them to break apart so the soreness it what's getting to me most. I have antibiotics and go back to the doctor tomorrow. Here's hoping I feel better soon. Jeremy is being so great thru all this, he really deserves an award for juggling all that he does.

5 comments:

  1. All my prayers and thoughts are with you, Jeremy and the girls.. Tell Holly-mouse to get better..

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  2. Please know we are standing with you in prayer & trust that the One who created these dear Girls knows exactly what they need & that He will make it known to their caregivers. Katie, we are praying you feel much better very soon. You are such a good Mommy & God knows the girls need you
    We love each of you so very much.

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  3. Sending prayers your way and extra love to Holly-mouse. Strength to you and Jeremy. Beth's long-time Bible study "family" is praying for all of you daily. Much much love and appreciate the updates.

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  4. Love you sister, sorry you still aren't feeling well. I hope it clears up for you soon. I pray for the girls a lot, I'll do a little double time for Holly-mouse. Love to all of you ♥ ♥ ♥

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  5. Prayers and well-wishes from the Millers. I hope the last few days have been positive and encouraging. Love to you all--

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